Niamh Vs Brain Cancer: First Night on Ward 10

Wednesday, 20 October 2010

First Night on Ward 10

Niamh did not wake up after the sedation for the MRI. One of the neurosurgeons came to see us to warn us that they may need to operate on her in the night to place a drain in her brain to relieve pressure in her brain. They reassured us that they were hoping she would be able to wait till her surgery the following afternoon or the following day.

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.

Wednesday, 20 October 2010

First Night on Ward 10

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