Niamh Vs Brain Cancer: Turn for the Worse

Sunday, 10 October 2010

Turn for the Worse

Once the appointment was made, Niamh became very tired. She spent most of the weekend (9th and 10th) asleep. Even when awake, she just wanted to lie down.

We knew then that something was seriously wrong.

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.

Sunday, 10 October 2010

Turn for the Worse

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