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Home for the weekend.

Niamh had a nice evening with daddy yesterday, fell asleep around 10pm but unfortunately woke up an hour later and was sick. She had a new Ng tube and went back to sleep. She had a relatively good night.

We had a nice day in hospital today. Emilie was off school so she spent the whole day with us. Niamh had a speech and language session as well as a physio session this morning. For the physio session, we went down to the gym in the physio department. Niamh did some great standing and walking. She seems a lot more stable on her feet than she was before. Emilie was a great source of motivation as always.

This afternoon Niamh had a blood transfusion. Her HB was 7.1 yesterday and 7.6 this morning. It is coming up but the doctors still wanted her to have a transfusion.

Once off the drips, she did lots of walking waiting for the consultant oncologist. She was so happy when he walked in and told her she looked great and was wearing a pretty dress.

We got home around 7.30pm this evening. Niamh was very very happy; she chatted all the way back in the car. Her communication has improved a lot since the operation, she is making more sounds and is really trying hard. Dribbling is as bad as before though.

We have to go back to Ward 10 on Sunday night. Niamh will have an MRI scan on Monday morning under general anaesthetic. Hopefully the suspicious thing that the neurosurgeon saw on the CT scan last Tuesday will be nothing to worry about. If it is, then there will be a total review of Niamh's treatment to come. If it looks okay, then she should be able to start Cycle 5 next Friday or the following Monday.

So the plan is to have a nice weekend and not think about the week to come.