Not such a good day today. The bump on Niamh's head (fluid) has been slowly coming back over the last few days and it seems quite firm today. This means that the shunt is not working at the moment. It did happen a couple of weeks ago and then just started working again so we just have to hope that it resolves itself over the next few days.
To make things a little more stressful, Niamh seems to be struggling to put weight on her right leg today. We did have a 'mummy/aunty' physio session this morning, she did well but we noticed a bit of weakness with her right leg. This evening she was not wanting to stand at all. It may be a direct link to the build up of fluid in her head (too much pressure).
She also complained this morning of a headache (well cried and showed her bump).
So the plan for this week:
Ward 10 - Possible review with the neurosurgeons on Wednesday if we are still worried about her bump. We have discussed her symptoms today over the telephone and they don't seem too worried. The symptoms they would be more worried about are vomiting and drowsiness which she doesn't have so far.
Ward 15 - Niamh may be able to start Cycle 5 chemo on Friday rather than Monday if her platelets are okay. We should hear tomorrow if the drugs can be given over the weekend or not.
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