Niamh had a pretty quiet day until the evening when her breathing started to change. Her breathing became much more rattling and much faster. These changes reached a peak at about 8pm when she was leaving big pauses between breaths. It seemed like she was stopping breathing and starting again. We weren't ready for this even though it's what we're here waiting for.
Niamh did settle a little after this and we repositioned her. She remained reasonably settled in the night with a few episodes like the earlier one.
We all stayed up late watching the sound of music and then slept close to Niamh.
It is jarring and unsettling to think of what you are waiting for; it is admirable that you do so with courage, with love, with caring, with sharing - and much, much more.
ReplyDeleteYou will always sleep with Niamh, and sleep easy, happy that you have done everything, and more, to ease and comfort her as she struggled.
We wish you well, and we send our love and support.
Noel and Mary.
This sounds a very dramatic change, and I am sure it is very frightening, no matter how well you prepare yourself for this.
ReplyDeleteThe sound of music is one of our family favourites and so heartwarming.
It's good to know you close to Niamh, I am very sure it helps her greatly.
I wish you well.
Astrid
je pense que l'on est jamais pret mais je vs trouve tous admirables vous entourez votre petite Niamh de tant d'amour et d'attentions ainsi que sa grande soeur Emilie
ReplyDeletebien affectueusement
anne marie
my love to you all. give the girls a big kiss from me and Cody. thinking of you. Kate.
ReplyDeleteWishing you all a peaceful night tonight. x
ReplyDeleteLorna A
Thinking of you all, you guys inspire me! Sending you my love. Julie XXX
ReplyDeleteThe depth of your strength in handling the unimaginable, let alone writing about it, knows no bounds, and is genuinely inspiring. Niamh and Emilie have been truly blessed with you both as such wonderfully strong and brave parents.
ReplyDeleteWe are so, so sad that you have been dealt such a deal in life; no-one should have to endure such a scenario. We hope that you can, even to a degree, take some comfort in the fact that so many people are constantly thinking of you all, and are sending much love and good wishes your way.
We are thinking of you all every moment, and hope you have a peaceful night tonight.
Warmest regards,
Aideen and Tom
I hope you all have a peaceful night with Niamh. Your always in my thoughts and I can't begin to imagine what you are all going though now the end is near. God bless you all now and always
ReplyDeleteAnne-Marie
xxxxx
Just to let you know we're thinking of you every day and especially these last few days. It's hard to convey how much we feel for you and you do an amazing job conveying your feelings in the blog with such sensitivity and in such an articulate way. Nobody should have to go through this but Niamh obviously couldn't be surrounded by more tenderness and love. We love you all very much and I am at the end of the phone if you want to talk. A kiss to both your beautiful girls and you are in our hearts and prayers, lots of love Pia, Simon and Sofia xxx
ReplyDeleteYour love is so amazing it is felt by all who read this and share, in some very small way, in your hurt and sorry, and in your moments of comfort and joy. Keep our love, our thoughts and prayers close and feed from them.
ReplyDeleteAlbert and Tricia
Nous partageons votre courage et votre douleur et nous vous envoyons plein de pensées positives.
ReplyDeleteJ-Claude , Mireille & les Filles
Since I have found out that you are at the hospice, I just cannot imagine what you all as a family are going through. You all are and have been in my prayers to Allah from the start of this battle. Niamh and Emilie are special little angels and will always be.
ReplyDeletethinking of you
Sadia xx
Bonjour Helene et Alex et Emilie
ReplyDeleteJ'ai suivi votre parcours sur ce blogg depuis de nombreuses semaines maintenant sans realiser que je pouvais vous envoyer des commentaires. Je le fais enfin pour vous dire toute la tristesse que je ressens en lisant ce que vous vivez. Mais aussi toute l'admiration que j'ai pour vous de ce que vous faites pour vos deux filles. Vous etes tous dans mes pensees presque constamment meme si je ne connais qu'Helene-si gentille Helene qui ne merite vraiment pas toute cette souffrance- Je vous envoie toute mon affection et vous souhaite beaucoup de courage pour les jours a venir, a vous, votre famille et les amis qui vous entoure. Vous etes de merveilleux parents. Nathalie de Belfast
Wishing for a miracle along with you, much love xxx
ReplyDeleteJust wanted to let you know I am thinking of you all. You are all in my thoughts and prayers!
ReplyDeleteSending love and cuddles to the girls
Love from
Jo x
Hello again you guys, sorry I couldn't be there today to see my little friend Emilie but I am, still, thinking of you all and sending my love and a special cuddle to Em. Hope to see you soon, Julie XXXXX
ReplyDeletemore caring parents you could not be, and two very strong daughters, too - you are all in my thoughts and prayers.
ReplyDeleteI know it's disappointing and I know you feel upset about this. But I want you to be calm and keep your faith firm. You can overcome this nightmare. My alternative cancer treatments center will be very happy to help you in case you need help.
ReplyDelete