Tuesday, 27 September 2011

A Bit of Sunshine

We were glad to spend the afternoon outside in the sunshine this afternoon with Niamh.

As Niamh cannot spend too much time in the pushchair anymore, we took the sofa from our bedroom outside with her ROHO mattress on it. Niamh was comfortable and her breathing calm.

Niamh has now been off fluid and food for two weeks. All the staff at Acorns seem as amazed by her strength and resilience as we are. Niamh is now very skinny, her body marks very easily so we change her position every few hours. She remains peaceful. The dose of her medicines was increased yesterday, first time since her syringe driver was put up on Wednesday 14th.

Emilie is now back at school after two weeks off.


Posted by Helene Brennan at 18:32

7 comments:

  1. Anonymous27 September 2011 at 19:57

    I see she is sleeping on a sleeping beauty pillow. She is indeed a sleeping beauty. May she have dreams of Princesses and Peppa Pig. Please send all our love to her and Emilie and to you both and please know that our thoughts remain permanently with you. Katy, Matt, Oliver and Alec xx

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  2. karen27 September 2011 at 21:05

    what a beautiful sleeping beauty and what a beautiful family my love n thoughts are with you all xxx

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  3. Anonymous27 September 2011 at 21:30

    What an amazing little fighter! A beautiful sleeping beauty! You are in my thoughts and prayers every day!
    With very best wishes
    Jo

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  4. Jane Hunt27 September 2011 at 22:35

    What beautiful photos radiating your love and tenderness along with the sunshine. How calm and peaceful Niamh looks. Thank you for sharing so much of your journey. God bless you all.

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  5. Anonymous28 September 2011 at 13:21

    Chaque soir, depuis dimanche, Annie nous fait part de la lente agonie de Niamh et aussi de votre étonnant courage tout le long de ce calvaire.
    Votre comportement à tous est exemplaire.
    Nous pensons à vous à tout instant de la journée.
    Mireille & Jean-Claude

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  6. Anonymous28 September 2011 at 21:53

    We have you in our hearts and thoughts each and every day, and always find a smile when we think of you and your beautiful girls. Simply blown away by your courage to keep us all so close to this journey. Love from us all. Ed, Christine, Erin & Mia.

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  7. Anonymous29 September 2011 at 09:14

    C'est avec tristesse que je vous écris ce message...Annie vient de me faire part de la tragique épreuve que vous traversz...Que mon affection la plus profonde vous accompagne et
    que l'amour pour Niamh reste le plus beau des liens qui unit votre famille.
    De tout coeur avec vous...A.M B

    ReplyDelete

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